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Fundraisers help boy, 6, fight disease


Noah Reynolds has cystic fibrosis, and ways to help are on calendar

by: COURTESY PHOTO: NICOLE REYNOLDS - Nicole Reynolds holds 6-year-old Noah, who suffers from cystic fibrosis. The progressively fatal disease has attacked his pancreas, blocking his ability to absorb fat, which leaves him in the 3rd percentile for body weight among children his age. Noah doesnt understand why he is sick, but is excited about the fundraising events his mom has organized.One Forest Grove woman is unable to work because her son’s disease requires constant care, but she’s taking money matters into her own hands while giving her boy something to look forward to.

Nicole Reynolds is mother to 6-year-old Noah Reynolds. Noah loves to paint and do arts and crafts. He loves trains and train books, especially Thomas the Train. Noah also has a crippling fatal disease, cystic fibrosis, that’s attacking his respiratory system.

To keep Noah alive, Reynolds stays home and gives her son 24 different pills and five inhalants each day. He must use a vest — which clears mucus from his lungs’ airways — for 20 minutes twice a day.

“We’re struggling to make it,” said Reynolds. “It’s hard to survive when you can’t work.”

Two of the medications Noah must take daily cost about $3,000 a month. Reynolds said because of the medical demands to keep her son alive, working with insurance companies feels like “war.”

On top of cystic fibrosis, Noah has tumors in his esophagus calling for a special dairy-free diet. Because of his limitations, Reynolds said Noah goes through waves of depression. He’s missed a lot of school because being exposed to someone with a slight cold leaves Noah ill for more than a month, said Reynolds.

“He’ll try and keep up with other kids and he can’t. His lungs won’t let him and he’s too weak,” she said. “It’s so hard to give him a good life and not have the income to do normal 6-year-old things because of the medical costs.”

Noah will undergo surgery Sept. 20 to clear out his lungs, and doctors plan to insert a feeding tube that he will be on for 15 hours a day for the rest of his life.

Desperate to try and help her son, Reynolds is hosting two fundraisers this summer.

“I’m going to start raising money and see how far I can go,” she said. “If I can help my son, I can hopefully help others too.”

She created Noah’s Cause, a Facebook page to bring awareness about their family’s struggles, in late July. Besides family photos, Reynolds has organized ways for people to donate.

The first fundraiser for Noah is a car wash at Kramer’s Auto Body and Car Stereo from 10 a.m. to 5 p.m. Saturday, Aug. 10. Reynolds’ brother, Chris Kramer, owns the shop and is donating the space and time for her to host this event. They have organized 20 volunteers who agreed to help all day. Kramer’s is located at 2632 19th Ave.

“I’m going to cook them all barbecue for helping us,” Reynolds said.

The second fundraiser is a plated dinner at OutAZAblue on Aug. 22.

The menu includes salad, an entrée and dessert, and tickets are $25 per person.

Out of 100 tickets available, there are 75 left to purchase. OutAZAblue is located at 57625 N.W. Wilson River Highway in Gales Creek.

Tickets can be purchased by contacting Cassie Wandell at 503-442-3211. Noah, Nicole’s husband Josh and their younger son will all be there.

Proceeds from both fundraisers go to Noah’s surgery costs.

“The number of people commenting or visiting the web page and saying that they’re excited about the events is giving me hope that I’m not alone,” said Reynolds. “I haven’t felt this peace inside of me in so long.”

So far, one donation has been made to Noah’s Cause through the account.

While she hopes there will be more support for her son, Reynolds is already grateful. “To see people stop and care is really awesome,” she said.