Car wash to benefit young woman with rare genetic disorder
Ashly Young will travel to Cincinnati Children's Hospital July 17 for trachea and airway surgery
Born with a rare genetic disorder called geleophysic dysplasia, Ashly Young, 21, has dwarfism, heart defects and pseudotumor cerebri, a condition which requires shunts to rid of her excess spinal fluid.
The disorder also affects her trachea with severe tracheomalacia, making her trachea collapse like a squished straw.
Doctors have told Young's family the condition is life threatening, and something must be done this summer.
The Family is raising money to send Ashly and her mother Shilo to Cincinnati Children's Hospital for trachea and airway surgery Thursday, July 17.
A benefit car wash will be held 10 a.m. to 4 p.m. Saturday, July 5, at Firestone Tires, 2105 N.E. Burnside Road, Gresham.
Proceeds will help the family pay for airfare, travel expenses, food, insurance and a motel for a possible two-month stay during Young's recovery.
Last summer, Young had major airway surgery at the Cincinnati hospital that sewed her upper trachea to her sternum and over her aortic vein; however, her symptoms have come back, and worse than before.
During her trip in July, Young will undergo further evaluations, a flexible three-way bronchoscopy and further trachea and airway surgery.
If she needs further intervention, the hospital will open Young's chest, remove rib cartilage and possibly create new tracheal rings or a support to force open her trachea.
An account has been set up for Young's medical trip at Northwest Priority Credit Union, 12630 S.E. Division St., Portland. The account is under Shilo Young.
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