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Showing up for Joe
- Communities reach out after Banks teen undergoes brain surgery
A close friend of the White family in Banks stopped by their home Jan. 29 and dropped off a baseball for 14-year-old Joe White, who was fighting for his life in a Portland hospital after suffering a stroke and enduring emergency brain surgery eight days earlier.
The teens mother, Jeanne, wrote about the gesture on Stay Brave Joe White, a Facebook page dedicated to her sons predicament and to his recovery.
It reminded him of Joe because the stitching on the ball matched the stitching on Joes head, she said. It was smooth and white but leathery tough. It was hard, just like Joes head. And it represents a goal to get to.
The metaphorical ball then underwent a transformation of its own: Pediatric Intensive Care Unit staff members who tended to Joe at Doernbecher Childrens Hospital in Portland signed it and presented it to the young athlete before his discharge and ride across the Willamette River to Legacy Emanuel Medical Centers Randall Childrens Hospital last Saturday.
Thats just one example of the outpouring of encouragement Dave and Jeanne White and their kids, Joe and Emma, have received from their community in recent weeks as they slog through a horrific medical ordeal that has taxed their physical and emotional reserves.
Friends and family are here for us of course, said Jeanne White, who describes her son as a kind-hearted, laid-back person who likes video games and hanging out with his friends. But people we dont even know are reaching out as well. I get overwhelmed just thinking about it.
Forest Grove friends Kelly and John Campbell have given Emma, a sixth-grader at Banks Elementary School, a home away from home Monday through Friday so her parents can tend to her brothers many needs.
She comes home on the weekends, Jeanne said of her daughter, who turned 12 on Jan. 24. She wanted to keep going to class. Her refuge has been at school.
Time bomb in the brain
Joe, 14, was taking batting practice during open gym on Jan. 19 when he complained of a bad headache. Moments later, he collapsed.
He had gone over to get a drink of water, said his father, a Hillsboro Police Department patrol sergeant. Joes coach called me and I shot over there.
When I arrived I looked at Joe, and he smiled. Thats when I saw the left side of his face wasnt working right.
Someone called 911 and within minutes an ambulance was headed east on Highway 26, Jeanne riding in the back with her ailing son.
Its all a blur, Dave said Saturday. Its been a couple of weeks, and it feels like a lifetime but also not long at all.
The frantic parents soon learned that a vein had burst in Joes brain, causing the stroke and partial paralysis. The culprit was an arteriovenous malformation (AVM), an abnormal connection between a persons arteries and veins.
The Whites had no idea their son had the congenital condition, which can be debilitating or even fatal.
He didnt have seizures and hadnt had headaches beyond what kids normally have, said Dave. They call AVM a time bomb in the brain. You dont know its there until it manifests.
On Tuesday, Jan. 21, Joe crashed really hard, his dad said. Doctors had to intubate him and place a stent in his brain to siphon off fluid. They removed the AVM during the operation as well.
It was touch and go there for a while, Dave, who has remained at his sons hospital bedside 24 hours a day, said of the jumble of events that took place last month. One of his doctors told us he didnt think Joe was going to make it.
Another voiced a different bleak outlook: if Joe survived, he could have longstanding cognitive and developmental disabilities.
But the spunky teen wouldnt quit. Since the evening he arrived in Providence St. Vincent Medical Centers emergency department then was taken to Doernbecher Childrens Hospital at Oregon Health & Science University and finally transferred to Randall Childrens Hospital hes fought his way back from the brink.
Joes left side is still weak, but no longer paralyzed, and hes alert and talking. And now that hes had the surgery, its unlikely the problem will return, his father said.
Over the weekend he walked up and down the hallways at Randall unassisted. Physical therapists and speech therapists, called in to put him through his paces, have been amazed at his progress.
I think the skys the limit for him, Dave White said. No one has put a boundary on what Joe can do.
Mom has cancer
Jeanne, a homemaker who has had her own serious health challenges in recent years, continues the hospital vigil during the day, allowing Dave to sometimes catch a nap or shower.
She was diagnosed with breast cancer in 2005 and underwent a single mastectomy and post-treatment reconstructive surgery. Jeanne was cancer-free for seven years before doctors discovered the malignancy had spread to her bones in 2012.
My doctors have given me three years, Jeanne, 41, a 1990 graduate of Banks High School, said through tears. But were hoping for more like six or seven. Its hard, because you try to focus on the life you have right here, right now.
Her husband of 16 years chimed in: Theres no other option except to keep trying and keep moving ahead.
The couple and their community a circle that has widened to include two hospitals worth of angels in nurses clothing, as Dave calls them, arent giving up on Joe, either.
Since settling into Randalls inpatient therapy unit, Joe has made good progress with his speech and is gaining strength physically, re-mastering some of his fine motor skills. His family has been concerned about his appetite doctors have been threatening to insert a feeding tube if he doesnt start to take in more calories on his own but early Sunday morning he woke up and scarfed down three slices of pizza, his mother said. That was a good sign.
He looked forward to a visit from his cousin, Kyle Hein of Forest Grove, that afternoon and planned to watch the Super Bowl with the boys, Jeanne added.
Keep him laughing
Helping Joe maintain a sense of humor through the rigors of physical therapy sessions that are painful and frustrating at times is one of Daves goals.
He laughed for the first time since hes been in the hospital yesterday and I have decided to make it a mission to keep him laughing, said Dave.
Joes strides are due at least in part, his parents believe to the support and well-wishes hes received from townsfolk in Banks and beyond.
Im not super-religious, noted Jeanne, but I turn toward family and friends and their prayers are welcome.
Friend Christy Greagor has known Jeanne since the two women were in second grade, and their husbands met when Steve Greagor was on the Hillsboro police force with Dave. Steve Greagor is now assistant city manager in Hillsboro.
Dave was a groomsman at our wedding, and Jeannes twin sister was a bridesmaid of mine, said Christy. Dave and Jeanne met at our wedding, and within a year they were engaged.
Greagor pointed out that a decade and a half has passed since then.
We have gone through their battle with breast and bone cancer with them, and having Joe so sick has hit everyone hard, he said.
Greagor has been buoyed by the acts of compassion going out to her friends.
I am so amazed at our community and the kids in the junior high, who have brought meals, run errands and sent Joe and his family caring messages via social media. All the prayers and support from those kids to Joe are beautiful.
Darcy Vandenhoek, an evidence technician at the Hillsboro Police Department, suggested the Whites start a GoFundMe campaign online. As of last week, $5,770 had been donated toward defraying the costs of a hospital bed and other medical devices Joe might need in his bedroom once he gets back home.
Thats all he really wants to come home, Dave said. Hes willing to do the work because he has that goal. Joe is definitely making strides. Were cautiously optimistic.
Whether its two more weeks or two more months before Joe gets his discharge papers, its clear he and his parents are counting on his recovery.
Dave returned to the baseball metaphor to describe the White familys determination to surmount Joes medical troubles and Jeannes cancer.
You get thrown a curve ball and you catch it, he said. Then you move forward. You dont get to give up ... you dont get to throw in the towel. You dont get to hide in a closet and cry for long, anyway.
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